In January 2005, we put together a questionnaire that could be used to document the experiences of so many of you who have written to us. Our goal was to combine the specifics of your individual conditions, and to report those trends on this survey page. In order to preserve your privacy, your identities are known only to us. Your responses are integrated with other surveys submitted, and the data presented in a statistical format.

If you have experienced CPT, we would really appreciate your participation. Please send us an e-mail, and request the link. Your survey responses can be instrumental in helping other ladies make more informed treatment choices for themselves.

Results are presented as the total number of responses for each answer, and in some cases as a percentage of the total number of ladies who completed the survey. Percentages are rounded to the nearest whole number.

Each answer is displayed as the total number of ladies who indicated a symptom in a given age range. The final column displays an overall percentage of ladies who reported each symptom, regardless of the age at which the symptom was experienced.

Menstrual Symptoms	10-12 yrs	13-15 yrs	16-18 yrs	19-21 yrs	22+ yrs	Total % of respondents
Irregular cycle	1	5		1	5	41%
Pelvic pain	2	2	3	1	5	45%
Severe cramping	4	7	3	4	3	72%
Heavy flow or clotting	1	4	1	2	11	66%
Pre menstrual syndrome (PMS)	3	5	2		6	55%
Fatigue		4	3	2	8	59%
Migraine headaches	1	1	2	1	4	31%
Dizziness / light-headedness		1	1	1	5	28%
Depression		1	1		7	31%
Anxiety			2		4	21%
Nausea or vomiting		2	1	3	3	31%
Constipation	1	2	2	3	5	45%
Bowel pain				1	6	24%
Bloody stool (during cycle only)			1		4	17%
Bloating	1	4	3	1	10	66%
Abdominal pain	1	3		1	7	41%
Pica (chewing on ice)		1			2	10%
Restless leg syndrome		1	2		3	21%
Low blood sugar / fainting		3	2	1	3	31%
Lower back pain			1			3%
Low iron					1	3%
No menstrual symptoms						0%

Each answer is displayed as the total number of ladies who indicated a diagnosis in a given age range. The final column displays an overall percentage of ladies who reported each diagnosis, regardless of the age in which the diagnosis was received.

Menstrual Diagnosis	16-20 yrs	21-25 yrs	26-30 yrs	31-35 yrs	36+ yrs	Total % of respondents
Endometriosis		1	6	1	6	48%
Uterine fibroids				2	6	28%
Ovarian cysts	1	1	5	2	2	38%
Cervical dysplasia		2	1	1		14%
Infertility			4	2	1	24%
Fibrocystic breasts		1	1	1	1	14%
Hypoglycemia			1			3%
Anemia	1			1	1	10%
Fibromyalgia						0%
Chronic fatigue syndrome						0%
Irritable bowel syndrome				2		7%
Dysmenorrhea	1					3%
No menstrual diagnosis						14%

These procedures were performed in order to treat, resolve or repair a menstrual abnormality or condition, prior to CPT diagnosis. Each answer is displayed as the total number of ladies who indicated a procedure in a given age range. The final column displays an overall percentage of ladies who reported each procedure, regardless of the age in which the procedure was endured.

Surgical / Laparoscopic or other Procedure	16-20 yrs	21-25 yrs	26-30 yrs	31-35 yrs	36+ yrs	Total % of respondents
Laparoscopic removal of endo		1	3	1	3	28%
Fibroid removal					3	10%
Cervix cryosurgery		1	1	1		10%
Ovarian cyst removal			2	1	2	17%
Uterine prolapse repair				1	1	7%
D&C or Ablation procedure	1	1		2	1	17%
Tubal ligation					1	3%
Partial Oophorectomy (one ovary removed)			1		1	7%
Partial Hysterectomy (uterus removed, ovaries retained)					1	3%
Full Oophorectomy (both ovaries removed)						0%
Full Hysterectomy with Oophorectomy						0%
No surgical / laparoscopic procedures performed						52%

These medications were prescribed in order to treat or resolve a menstrual condition, prior to CPT diagnosis. Each answer is displayed as the total number of ladies who indicated a medication in a given time frame. The final column displays an overall percentage of ladies who reported each medication, regardless of how long the medication was taken.

Medications prescribed	1-3 mos	4-6 mos	7-12 mos	1-2 yrs	3+ yrs	Total % of respondents
Oral contraceptives (ethinyl estradiol + progestin)	1			1	10	41%
Mirena coil (intra-uterine progestin)	2					7%
Depo Provera (medroxyprogesterone)	1	1				7%
Zoladex (goserelin, GnRH agonist)		1				3%
Lupron (leuprolide, GnRH agonist)				1		3%
Dimetriose (gestrinone, GnRH agonist)		1				3%
Fertility hormones		1				3%
Tamoxifen				1		3%
Prometrium (micronized progesterone)						0%
Bio-identical progesterone cream	1					3%
No medications prescribed						52%

CPT Symptom	<32 yrs	33-35 yrs	36-38 yrs	39-41 yrs	42-44 yrs	45+ yrs	Total % of respondents
Chest pain	9	1	4	4	3		72%
Back / shoulder blade pain	8	1	6	6	2	1	76%
Shortness of breath	6	1	5	3	1	1	59%
Dizziness	4		1	2			24%
Crackling sound with inhalation	4		3	7	4		62%
Feeling of "bubbles" or lung movement with bending	5	1	2	6	3		59%
Fatigue		1		1			7%
Shoulder pain	1	1	2	2			21%
Cough						1	3%
Side pain			1				3%
Coughing up blood					1		3%
No CPT symptoms experienced							14%

Each answer is displayed as the total number of ladies who indicated the treatment as her last by the number of months she has remained collapse-free, following the reported treatment. The final column displays an overall percentage of ladies who reported the treatment as her most recent, regardless of the length of time she has been collapse-free. (For this table, VATS and Thoracotomy are understood to be the surgical means by which the surgeon performs a repair procedure, but are not treatments in of themselves.)

Final or Continuing Treatment	1 mo	3 mos	6 mos	12 mos	18 mos	2 yrs	3+ yrs	Total % of respondents
No treatment	1		1					7%
Aspiration / Chest tube		1						3%
Pleurodesis (all kinds)	2	1	1		1			17%
Diaphragm repair - suture/stapling						1		3%
Diaphragm repair - poly mesh						1		3%
Bleb rep

Complication	Total # of respondents	Total % of respondents
Gestational diabetes	1	3%
Blood platelet disorder	1	3%
Thrombophilia	1	3%
Miscarriage	1	3%